Autism Labeling: An Acute Debate in the Autistic Community

In discussions surrounding autism, one significant debate often arises: the appropriate way to refer to individuals on the autism spectrum. This essay explores the controversy over the preferred terminology, with an emphasis on the personal and communal impact of the language used.

Historical Context

Diving into the history of autism labeling, there is a narrative that can be traced back to educational settings and early interventions. During my Special Education training, which was approximately 18 years ago, there was a specific incident that highlighted the evolution of terminology. I was involved in a discussion about a student with autism, and while my fellow student advocated for the usage of "student with autism," I maintained that the term was irrelevant to my approach or the student's identity. The professor intervened to assert that to place the student before the condition was the appropriate way. Although I conformed for the sake of the classroom, I reiterated in my personal and professional life that the individual's name was prioritized over their diagnosis, adhering to confidentiality guidelines.

Autistic Identity vs. Labeling

For many autistic individuals, the focus on labeling as a means to describe them can be deeply offensive. As someone who identifies as autistic, I believe that autism is an integral part of one's identity, rather than a condition that can be separated from the individual. This perspective is aligned with the broader autistic community's stance, a stance that emphasizes that individuals are not less whole or less human because of their autism. The term "autistic" is seen as an adjective that describes a trait, just like being "black" or "gay." Such terms do not diminish a person's identity but rather provide a means to describe a part of who they are.

The Argument Against "Person First" Language

The "person first" language, such as "a person with autism," can be seen as detrimental because it implies that someone could exist without their autism. For many autistic individuals, being autistic is a defining aspect of their identity, contributing to their sense of self and the world around them. Language should reflect this reality, not create a false sense of division between the individual and their autism.

User Moniker Controversy

Another aspect of this debate involves personal identity choices. It is not uncommon for parents or caregivers to impose a standardized identity label on their children with autism. A coworker that I know has three children on the spectrum. Recently, their child insisted on being referred to as "Autistic Boy," a choice that the special education teacher challenged, claiming it was inappropriate as it should be "a boy with autism" to put the person first.

Such instances illustrate the tension between individual autonomy and external expectations. Autistic individuals often face decisions about how they wish to be identified, and it is crucial to respect their preferences. Demanding that an individual use a term they dislike can be seen as a form of paternalism or even arrogance. It's important to recognize that personal identity and self-identification matter, and these choices should be respected.

The Future of Autism Terminology

While the debate continues, there are ongoing discussions about the appropriateness and acceptability of various terms. Terms like "autist" are occasionally heard but come with uncertainty. The acceptance of new terms can be a double-edged sword; while they may strive for inclusivity, there is a risk that they could revert to negative connotations over time. Moreover, the similarity in pronunciation between "autist" and "artist" can cause confusion, particularly in different regional accents.

Ultimately, the journey to inclusive language in the autistic community requires an open dialogue, respect for personal preferences, and a continual reevaluation of the terms used to describe individuals. The choice of words can significantly impact how individuals are perceived and their sense of self. By acknowledging and honoring personal autonomy, we can foster a more inclusive and empathetic environment for all individuals on the autism spectrum.