Autism and Functioning in Society: Insights from a 79-Year-Old Aspie

Introduction

Autism is often perceived as a barrier to normal life, requiring constant assistance and support. However, there are stories of individuals who navigate life independently and successfully, leading fulfilling lives without much external help.

A Case Study: My Journey

At 79 years old, I am an Aspie, diagnosed with Asperger's Syndrome and ADHD. In addition, I have Neuromatosis Type 1, Pervasive Demand for Autonomy (PDA), and several other health conditions. Despite these challenges, I have had a rich, diverse career encompassing teaching, lecturing, professional marketing, advertising, and creative directing. I have also published several books, columns, and am a public speaker and serial entrepreneur.

To date, I have three adult children and grandkids who are similarly functioning. My autistic grandchildren, some with Master's degrees, have successfully started their own businesses in business and IT. The younger ones are still actively studying and training for their adult lives. I am planning to play a guiding role for the next few years to support them.

Understanding Autism Beyond Labels

Autism is not and should not be defined by labels such as "mild" or "severe." Autistics are not objects, accessories, or mere diseases. Instead, it is an integral part of who we are. Lumping autism into different categories is a misrepresentation of reality. It is no different than saying someone is "mildly pregnant."

The Role of Motivation and Support

Contrary to popular belief, individuals with high functioning autism can complete any task they set their minds to, just like anyone else. The key lies in motivation and a support system. Without exceptions, non-autistic individuals benefit from therapy too. We interact with high-functioning autistic individuals frequently without even realizing it.

Coping Strategies and Challenges

While many of us can function well on our own, certain challenges persist. Distractions, disorganization, and sensory sensitivities are common. However, the impact varies based on personal motivation and other mental disorders that may co-exist. For instance, someone may be highly organized in their areas of interest but struggle in other domains. A case in point is my spouse, who is highly organized with his Lego collection but not with his household tools.

The Impact of Society and Labels

Society's focus on intricate labeling, combined with the concept of disorder-as-identity, can create a sense of victimhood among some on the spectrum. This leads to the belief that lacking constant attention and support is a targeted issue. However, functional ability is heavily influenced by personal motivation to overcome difficulties. The stigma of being labeled "autistic" and the demand for constant support can contribute to a negative cycle.

Additionally, the increasing glamorization of mental health issues can burden society with the responsibility of accommodating unreasonable demands. This, in turn, can discourage individuals with challenges, leading to a less productive and more demotivated workforce.

Conclusion

In summary, while autism presents unique challenges, it is not an insurmountable hurdle. With the right motivation, support, and understanding, individuals with high functioning autism can thrive and make positive contributions to society. The focus should be on harnessing their strengths rather than being mired in misguided labeling and societal expectations.